[CODATA-international] information request for a Friday
boykern at yahoo.com
Fri Mar 12 20:30:17 EST 2021
Hi all.This has been an interesting discussion thread. Here are my 2 cents worth
Generally when data are de-identified, there is a loss of detail as there are various suppression technics that are used. A general overview can be found at https://www.ihsn.org/sites/default/files/resources/IHSN-WP005.pdf
Since that paper was written, there has been progress made in software to assist in the creation of anonymous files and an increasing use of remote dat access. One example is from Statistics Canada https://www.statcan.gc.ca/eng/rtra/rtra
A third approach that is used is to establish data enclaves. An example: https://www.statcan.gc.ca/eng/microdata/data-centres
Someday, we hope to reach a state where data will not have to leave home but rather will be "visited" by researchers.
Each approach has pros and cons.
https://codata.org/canada/ Onward and Upward! C.S. Lewis
On Friday, March 12, 2021, 07:32:17 PM EST, Greg Janée <gjanee at ucsb.edu> wrote:
What is the concern with using de-identified data?
> On Mar 12, 2021, at 8:07 AM, Daureen Nesdill <daureen.nesdill at utah.edu> wrote:
> For the record, at this year’s RDAP Summit we learned that those in clinical research are learning to redo their consent forms to include, if appropriate, the sharing of the de-identified data beyond the research project.
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