[CODATA-international] information request for a Friday

[Fraser Taylor]

Good Afternoon Daureen,
Thank you. Data dealing with environmental knowledge and observations is not usually destroyed.
Fraser.

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________________________________
From: Daureen Nesdill <daureen.nesdill at utah.edu>
Sent: Friday, March 12, 2021 1:21:46 PM
To: Fraser Taylor <FraserTaylor at Cunet.Carleton.Ca>; Greg Janée <gjanee at ucsb.edu>
Cc: Greenberg,Jane <jg3243 at drexel.edu>; RICE Robin <R.Rice at ed.ac.uk>; codata-international at lists.codata.org <codata-international at lists.codata.org>
Subject: RE: [CODATA-international] information request for a Friday

[External Email]

The original consent form signed by the participant usually does not address the sharing of data. We see “the data will be destroyed at the end of the project”, etc..



Daureen



From: Fraser Taylor [mailto:FraserTaylor at Cunet.Carleton.Ca]
Sent: Friday, March 12, 2021 10:26 AM
To: Greg Janée <gjanee at ucsb.edu>; Daureen Nesdill <daureen.nesdill at utah.edu>
Cc: Greenberg,Jane <jg3243 at drexel.edu>; RICE Robin <R.Rice at ed.ac.uk>; codata-international at lists.codata.org
Subject: Re: [CODATA-international] information request for a Friday



Using de-identified data helps with some issues but does not resolve all of the problems.



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________________________________

From: Greg Janée <gjanee at ucsb.edu<mailto:gjanee at ucsb.edu>>
Sent: Friday, March 12, 2021 12:15:36 PM
To: Daureen Nesdill <daureen.nesdill at utah.edu<mailto:daureen.nesdill at utah.edu>>
Cc: Fraser Taylor <FraserTaylor at Cunet.Carleton.Ca<mailto:FraserTaylor at Cunet.Carleton.Ca>>; Greenberg,Jane <jg3243 at drexel.edu<mailto:jg3243 at drexel.edu>>; RICE Robin <R.Rice at ed.ac.uk<mailto:R.Rice at ed.ac.uk>>; codata-international at lists.codata.org<mailto:codata-international at lists.codata.org> <codata-international at lists.codata.org<mailto:codata-international at lists.codata.org>>
Subject: Re: [CODATA-international] information request for a Friday



[External Email]

What is the concern with using de-identified data?

> On Mar 12, 2021, at 8:07 AM, Daureen Nesdill <daureen.nesdill at utah.edu<mailto:daureen.nesdill at utah.edu>> wrote:
> For the record, at this year’s RDAP Summit we learned that those in clinical research are learning to redo their consent forms to include, if appropriate, the sharing of the de-identified data beyond the research project.



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