[CODATA-international] information request for a Friday

Fraser Taylor FraserTaylor at Cunet.Carleton.Ca
Fri Mar 12 12:25:42 EST 2021

Using de-identified data helps with some issues but does not resolve all of the problems.

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From: Greg Janée <gjanee at ucsb.edu>
Sent: Friday, March 12, 2021 12:15:36 PM
To: Daureen Nesdill <daureen.nesdill at utah.edu>
Cc: Fraser Taylor <FraserTaylor at Cunet.Carleton.Ca>; Greenberg,Jane <jg3243 at drexel.edu>; RICE Robin <R.Rice at ed.ac.uk>; codata-international at lists.codata.org <codata-international at lists.codata.org>
Subject: Re: [CODATA-international] information request for a Friday

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What is the concern with using de-identified data?

> On Mar 12, 2021, at 8:07 AM, Daureen Nesdill <daureen.nesdill at utah.edu> wrote:
> For the record, at this year’s RDAP Summit we learned that those in clinical research are learning to redo their consent forms to include, if appropriate, the sharing of the de-identified data beyond the research project.

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