[CODATA-international] INFORMED DECISIONMAKING RE: Data Together COVID-19 Appeal and Actions

Mon Mar 30 16:33:53 EDT 2020

Dear Colleagues, Fotis et al.

bravo on the progress; well done.

I value all those efforts and directions.

My last email on this topic though:

In the tragic light of many many, thousands, if not more,
DEATHs etc. re virus and related health issues (zoonotics as just one
example)
my comments on OPen Access progress and such efforts are fourfold:

-way TOO LITTLE TOO LATE

-the few good deeds are easily exploited and used as a greenwash and
healthwash by the bad actors (which seem to dominate).

-we have seen and heard such things of progress since Jame Cook,
Enlightenment many centuries ago. So where are we now ?

-ivy league education and research, ha ha. Tuition spent for what by whom ?

Nobody really believes those things like open access and progress anymore
in earnest, and trust is lost for good; done with.
How about the pervasive force and framework of capitalism, and to change it
?

Re. the EU and many others, beyond 'raw medicine and vet' data I mentioned
in the last email, I can here just repeat what I stated and experienced for
several decades in all outlets I have available:
=>Get the bird data like ICARUS with Max Planck Inst (
https://www.mpg.de/13684039/icarus-test-phase), Bird Banding Centers
(EURING and RSPB/BTO UK), MOVEBANK.org, Fisheries data,
WindPark impact data, even museum data and university-based science (I am
thinking here of forest inventory, or freshwater fish & contaminant data for
major rivers like Elbe, Rhine, Danube, and then PRIMATOLOGY Centers,
Development AId, Antarctic Service  etc etc) online, open access free of
charge in a meaningful usable format for people to use.
Open Source GIS is one of those formats to employ.
And do it now.  The open WWW is there, so why not using it ? It's blunt
mis-management any other, and for everybody to see. People die because of
it, unused management opportunities.

That's my informed personal view on the issue.

Kind regards and thanks; let's try to stay safe while data are blocked and
not used

  Falk Huettmann PhD, Professor
    Uni of Alaska Fairbanks

On Mon, Mar 30, 2020 at 11:51 AM Fotis E. Psomopoulos <fpsom at certh.gr>
wrote:

> Dear Falk,
>
> thank you for raising this issue - I definitely echo the need for cultural
> change (especially within the medical community)!
>
> That being said, I have a more optimistic view, as I believe that there
> are also positive steps towards this direction (at least as I perceive them
> through my probably naive and definitely EU-biased lenses). Major
> e-infrastructures and initiatives, such as ELIXIR
> <https://elixir-europe.org/> and RDA <https://www.rd-alliance.org/> are
> working towards making medical data more accessible (and FAIR), with
> various Tasks and Groups tackling a particular issue at the time.
>
> This is even more evident in the current circumstances, where both ELIXIR (ELIXIR
> support for SARS-CoV-2 research
> <https://elixir-europe.org/covid-19-resources>), RDA (RDA-COVID19 Working
> Group <https://www.rd-alliance.org/groups/rda-covid19>) and EU (statement
> <https://edps.europa.eu/sites/edp/files/publication/20-03-25_edps_comments_concerning_covid-19_monitoring_of_spread_en.pdf>
> of the European Data Protection Supervisor on March 25th regarding this
> subject), to mention a few of the "majors", started the efforts towards
> making COVID-19 related data open, accessible and (wherever possible)
> connected to entire analysis workflows (see Galaxy SARS-CoV-2 projerct
> <https://github.com/galaxyproject/SARS-CoV-2>as well). Small step
> (maybe), but definitely in the right direction.
>
> Kind regards,
>
> Fotis E. Psomopoulos
>
> PS: Regarding  SARS-CoV-2, I'd definitely point you towards the Resources
> page
> <https://github.com/virtual-biohackathons/covid-19-bh20/wiki/Resources>
> of the upcoming COVID-19 BioHackathon
> <https://github.com/virtual-biohackathons/covid-19-bh20/wiki> (to take
> place virtually next week, 5-11 April 2020)
>
> On Mon, 30 Mar 2020 at 22:20, Falk Huettmann <fhuettmann at alaska.edu>
> wrote:
>
>> Dear all,
>>
>> thanks;
>> so as we frequently find with medical data specifically,
>> those are not really shared, made available, used well, and the hospitals
>> are usually the LAST ones to do so; as is the medical profession,
>> e.g. Chief Surgeons, local clinics and professional organizations and
>> societies.
>> That's despite their huge salaries and sums spent on 'health'
>> and public health, on One Health projects and all such lipservices.
>>
>> COVID-19 shows us no other, nor the 'great' OneHealth agencies,
>> funders and science institutions and organizations.
>> Just see the Arctic etc.
>> We never said any other.
>>
>> Or how about a (children) leukemia data base for Germany,
>> or all EU & Asian Avian Influenza, or Rabies data shared properly,
>> with coordinates and ISO-metadata and published and well-analyzed?
>>
>> It seems not to matter, nor do people really care.
>> I am not aware much that libraries demand those data for their
>> repositories neither, nor are many medical degrees having that
>> on their agenda, skill set and syllabi, at all. Add vets to that.
>>
>> So here then is an action item for ICSU, CODATA, NSF, EU, UN
>> and all those 'grand ones' to resolve, fast please, for a massive
>> cultural change.
>> And yes, the pharmaceutical industry fuels much of it; so one would
>> tackle those the most then.
>>
>> Just an idea for those who have none.
>>
>> Very best and please keep me posted
>>    Falk Huettmann PhD, Professor
>>     Uni of Alaska Fairbanks
>>
>> PS If you see public global COVID-19 data, compiled and authoritative
>> with coordinates and time and.or DNA, and metadata,
>> please kindly advise.
>>
>>
>> On Mon, Mar 30, 2020 at 9:22 AM Berkman, Paul A <Paul.Berkman at tufts.edu>
>> wrote:
>>
>>> Thank you Paul for your kind collaboration.  I look forward to feedback
>>> from Simon and hope you are doing well.  Stay healthy!!!  With best
>>> regards, Paul
>>>
>>>
>>>
>>> *From:* Paul Uhlir [mailto:pfuhlir at gmail.com]
>>> *Sent:* Monday, March 30, 2020 11:53 AM
>>> *To:* Berkman, Paul A <Paul.Berkman at tufts.edu>
>>> *Cc:* Asha CODATA <asha at codata.org>;
>>> codata-international at lists.codata.org; Simon Hodson, ED CODATA <
>>> simon at codata.org>
>>> *Subject:* Re: INFORMED DECISIONMAKING RE: [CODATA-international] Data
>>> Together COVID-19 Appeal and Actions
>>>
>>>
>>>
>>> That sounds excellent, Paul. I'm not centrally involved, but Simon is
>>> the coordinator for CODATA of this initiative. Hope all is well on your end
>>> too!
>>>
>>> Best wishes,
>>>
>>> Paul
>>>
>>>
>>>
>>> On Mon, Mar 30, 2020, 11:24 Berkman, Paul A <Paul.Berkman at tufts.edu>
>>> wrote:
>>>
>>> Hi Asha, Simon and Paul,
>>>
>>>
>>>
>>> I hope you are doing well.
>>>
>>>
>>>
>>> Thank you and CODATA for your leadership.
>>>
>>>
>>>
>>> I would like to help *Data Together COVID-19 Appeal and Actions*
>>> <https://codata.org/wp-content/uploads/2020/03/Data-Together-COVID-19-Statement-FINAL.pdf>.
>>>
>>>
>>>
>>>
>>> Perhaps my best form of assistance would be in helping with science
>>> diplomacy to transform data into evidence for informed decisions, operating
>>> short-term to long-term, in view of the decisionmaking institutions with:
>>>
>>>
>>>
>>> ·       *Governance Mechanisms* (laws, agreements and policies as well
>>> as regulatory strategies, including insurance, at diverse jurisdictional
>>> levels); and
>>>
>>> ·       *Built Infrastructure* (fixed, mobile and other assets,
>>> including communication, research, observing, information and other
>>> systems that require technology plus investment).
>>>
>>>
>>>
>>> Data are fundamental to address the immediate urgencies at security time
>>> scales as well as the urgencies across generations that will arise
>>> post-COVID-19 for our shared sustainability at local-global levels.   As
>>> introduced with science diplomacy training through the United Nations
>>> Institute for Training and Research (UNITAR) – informed decisionmaking
>>> skills, methods and theory are available to train and apply, transforming
>>> research into actions *“to service the new reality of data-driven
>>> science.”*
>>>
>>>
>>>
>>> Please let me know if I can be of further assistance.
>>>
>>>
>>>
>>> I hope you and those closest are doing well.   Stay healthy!!!
>>>
>>>
>>>
>>> With best regards,
>>>
>>>
>>>
>>> Paul
>>>
>>>
>>>
>>>
>>>
>>> *Prof. Paul Arthur Berkman*
>>>
>>> Director, Science Diplomacy Center
>>>
>>> Professor of Practice in Science Diplomacy
>>>
>>> Fletcher School of Law and Diplomacy
>>>
>>> Tufts University
>>>
>>> 160 Packard Avenue, Medford MA 02155
>>>
>>> Office: +1-617-627-6959
>>>
>>> Cell: +1-617-902-8361
>>>
>>> Email: paul.berkman at tufts.edu
>>>
>>> http://sites.tufts.edu/sciencediplomacy/
>>> <https://urldefense.proofpoint.com/v2/url?u=http-3A__sites.tufts.edu_sciencediplomacy_&d=DwMGaQ&c=c6MrceVCY5m5A_KAUkrdoA&r=-W0tYttYY2ls6FBzaQ0jgJPAJ_UDNvL6lzYvZV2flVs&m=46vGdcaSbcBSii0f6dt1E0uGahHxHfgSB-xoWuu2xgk&s=t1MDYA0VrK-CZ4UsCTRrqtmJhc8ZIHhi7Z3P81URsis&e=>
>>>
>>> www.scidiplo.org
>>>
>>> www.panarcticoptions.org
>>> <https://urldefense.proofpoint.com/v2/url?u=http-3A__www.panarcticoptions.org_&d=DwMGaQ&c=c6MrceVCY5m5A_KAUkrdoA&r=-W0tYttYY2ls6FBzaQ0jgJPAJ_UDNvL6lzYvZV2flVs&m=46vGdcaSbcBSii0f6dt1E0uGahHxHfgSB-xoWuu2xgk&s=eKe1UiYUnHInUHgwjhOx76qqOGDBMW_MBP_XTcroakw&e=>
>>>
>>>
>>>
>>> *Science Diplomacy: Antarctica, Science and the Governance of
>>> International Spaces* (2011), available from the Smithsonian Institution
>>>  (https://repository.si.edu/handle/10088/16154
>>> <https://urldefense.proofpoint.com/v2/url?u=https-3A__repository.si.edu_handle_10088_16154&d=DwMGaQ&c=c6MrceVCY5m5A_KAUkrdoA&r=-W0tYttYY2ls6FBzaQ0jgJPAJ_UDNvL6lzYvZV2flVs&m=46vGdcaSbcBSii0f6dt1E0uGahHxHfgSB-xoWuu2xgk&s=1t_bNYHOMf2kGVxYcj60ClpnwrL6hU0fGCcFgssdg-E&e=>),
>>> celebrating the first fifty years of the 1959 *Antarctic Treaty* at the
>>> 2009 Antarctic Treaty Summit in *“the interests of science and the
>>> progress of all mankind” *(www.atsummit50.aq
>>> <https://urldefense.proofpoint.com/v2/url?u=http-3A__www.atsummit50.aq_&d=DwMGaQ&c=c6MrceVCY5m5A_KAUkrdoA&r=-W0tYttYY2ls6FBzaQ0jgJPAJ_UDNvL6lzYvZV2flVs&m=46vGdcaSbcBSii0f6dt1E0uGahHxHfgSB-xoWuu2xgk&s=cqvJbc8mxGoSuMnb-COkEKjx1vX0i1bIdDCCKs0E3nk&e=>),
>>> as the first book published on SCIENCE DIPLOMACY.
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>>
>>> *From:* CODATA-international [mailto:
>>> codata-international-bounces at lists.codata.org] *On Behalf Of *Asha
>>> CODATA
>>> *Sent:* Monday, March 30, 2020 8:57 AM
>>> *To:* codata-international at lists.codata.org
>>> *Subject:* [CODATA-international] Data Together COVID-19 Appeal and
>>> Actions
>>>
>>>
>>>
>>> [image: Image removed by sender.
>>> https://codata.org/wp-content/uploads/2020/03/rda-codata-wds-gofair-1024x1010.jpg]*CODATA
>>> together with GO FAIR, RDA, and WDS (the four major international data
>>> organisations), are pleased to outline their joint commitment to work
>>> together to optimise the global research data ecosystem and to identify the
>>> opportunities and needs that will trigger federated infrastructures to
>>> service the new reality of data-driven science.*
>>> <https://codata.org/wp-content/uploads/2020/03/Data-Together-Final-Version-March-2020-FINAL.pdf>
>>>
>>> A first concrete example of this is the following ‘*Data Together
>>> COVID-19 Appeal and Actions*
>>> <https://codata.org/wp-content/uploads/2020/03/Data-Together-COVID-19-Statement-FINAL.pdf>
>>> ’
>>>
>>> The COVID-19 pandemic presents a major test for our science system and
>>> for our research and data infrastructures.  These infrastructures, such as
>>> open science clouds and data commons, must serve the needs of science,
>>> policy, and humanity not only in ‘normal times’, but also in times of
>>> crisis by providing controlled access to quality data in real-time and at
>>> scale for a range of scientific- and policy-related responses.
>>>
>>> The Data Together organisations are jointly working on the following
>>> activities and invite all to contribute:
>>>
>>> 1.     Data Together–GO FAIR Virus Outbreak Data Network
>>> <https://www.go-fair.org/implementation-networks/overview/vodan/>
>>>  (VODAN)
>>>
>>> 2.     The Data Together–RDA COVID-19 Working Group
>>> <https://www.rd-alliance.org/groups/rda-covid19>
>>>
>>> 3.     CODATA ‘Making Data Work for Cross-Domain Grand Challenges’
>>> <https://codata.org/initiatives/strategic-programme/decadal-programme/> for
>>> launch in 2021
>>>
>>> Read the full statement on *Data Together COVID-19 Appeal and Actions*
>>> <https://codata.org/wp-content/uploads/2020/03/Data-Together-COVID-19-Statement-FINAL.pdf>
>>>
>>>
>>>
>>> Thanks,
>>>
>>> Asha
>>>
>>>
>>>
>>> --
>>>
>>> ___________________________
>>>
>>>
>>>
>>> Asha Law | Program Assistant, CODATA | http://www.codata.org
>>>
>>>
>>>
>>> E-Mail: asha at codata.org
>>>
>>> Tel (Office): +33 1 45 25 04 96
>>>
>>>
>>>
>>> CODATA (Committee on Data of the International Council for Science), 5
>>> rue Auguste Vacquerie, 75016 Paris, FRANCE
>>>
>>> _______________________________________________
>>> CODATA-international mailing list
>>> CODATA-international at lists.codata.org
>>>
>>> http://lists.codata.org/mailman/listinfo/codata-international_lists.codata.org
>>>
>> _______________________________________________
>> CODATA-international mailing list
>> CODATA-international at lists.codata.org
>>
>> http://lists.codata.org/mailman/listinfo/codata-international_lists.codata.org
>>
>
>
> --
> Fotis E. Psomopoulos
> Assistant Research Professor
> INAB - Institute of Applied Biosciences
> CERTH - Center for Research and Technology Hellas
> Thermi 57001, Greece
>
> Phone: +30 2310 498 478
> Fax  : +30 2310 498 270
> Email: fpsom at certh.gr
> Site : https://fpsom.github.io
> ORCID: 0000-0002-0222-4273
>
> *While I may be sending this email outside my normal office hours, I have
> no expectation to receive a reply outside yours.*
>
>
>
> *Η επικοινωνία αυτή είναι εμπιστευτική και ενδεχομένως να προστατεύεται
> από νομικά πλαίσια. Εάν  λάβατε  αυτό το e-mail, ενώ δεν προορίζεται για
> εσάς, σας ενημερώνουμε ότι απαγορεύεται οποιαδήποτε διανομή, αντιγραφή ή
> χρήση της επικοινωνίας ή/ και των πληροφοριών που περιέχονται σε αυτό. Σας
> παρακαλούμε να ενημερώσετε κατάλληλα τον αποστολέα και να σβήσετε ή να
> καταστρέψετε τυχόν αντίγραφά της. Οι επικοινωνίες μέσω του Διαδικτύου δεν
> είναι ασφαλείς και για τον λόγο αυτό το ΙΝ.Ε.Β./ΕΚΕΤΑ  δεν αποδέχεται
> νομική ευθύνη για τα περιεχόμενα του παρόντος μηνύματος και για οποιαδήποτε
> ζημιά προκληθεί από ιούς που είναι δυνατόν να εισαγάγει.This communication
> is confidential and It may also be protected by legal rules.  If you are
> not an intended recipient please note that any form of distribution,
> copying or use of this communication or the information in it, is
> prohibited. Please inform the sender appropriately and delete or destroy
> any copies of it from your system. Internet communications are not secure
> and therefore INAB/CERTH does not accept legal responsibility for the
> contents of this message and for any damage whatsoever that is caused by
> viruses being passed.*
>
-------------- next part --------------
An HTML attachment was scrubbed...
URL: <http://lists.codata.org/pipermail/codata-international_lists.codata.org/attachments/20200330/c4d2ccda/attachment.html>
-------------- next part --------------
A non-text attachment was scrubbed...
Name: image001.jpg
Type: image/jpeg
Size: 15031 bytes
Desc: not available
URL: <http://lists.codata.org/pipermail/codata-international_lists.codata.org/attachments/20200330/c4d2ccda/attachment.jpg>