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Good Morning Ernie,</div>
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I hope that life is treating you well in these difficult times. Thank you for your interesting and useful inputs.</div>
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Best Wishes,</div>
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Fraser.</div>
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<div id="divRplyFwdMsg" dir="ltr"><font face="Calibri, sans-serif" style="font-size:11pt" color="#000000"><b>From:</b> Ernie Boyko <boykern@yahoo.com><br>
<b>Sent:</b> Friday, March 12, 2021 8:30:17 PM<br>
<b>To:</b> Daureen Nesdill <daureen.nesdill@utah.edu>; Greg Janée <gjanee@ucsb.edu><br>
<b>Cc:</b> Fraser Taylor <FraserTaylor@Cunet.Carleton.Ca>; codata-international@lists.codata.org <codata-international@lists.codata.org><br>
<b>Subject:</b> Re: [CODATA-international] information request for a Friday</font>
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<div dir="ltr">Hi all.</div>
<div dir="ltr">This has been an interesting discussion thread. Here are my 2 cents worth</div>
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<div dir="ltr">Generally when data are de-identified, there is a loss of detail as there are various suppression technics that are used. </div>
<div dir="ltr">A general overview can be found at <a href="https://www.ihsn.org/sites/default/files/resources/IHSN-WP005.pdf" rel="nofollow" target="_blank">https://www.ihsn.org/sites/default/files/resources/IHSN-WP005.pdf</a></div>
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<div dir="ltr">Since that paper was written, there has been progress made in software to assist in the creation of anonymous files and an increasing use of remote dat access. </div>
<div dir="ltr">One example is from Statistics Canada <a href="https://www.statcan.gc.ca/eng/rtra/rtra" rel="nofollow" target="_blank" class="">https://www.statcan.gc.ca/eng/rtra/rtra</a></div>
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<div dir="ltr">A third approach that is used is to establish data enclaves. An example: <a href="https://www.statcan.gc.ca/eng/microdata/data-centres" rel="nofollow" target="_blank" class="">https://www.statcan.gc.ca/eng/microdata/data-centres</a> </div>
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<div dir="ltr">Someday, we hope to reach a state where data will not have to leave home but rather will be "visited" by researchers. </div>
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<div dir="ltr">Each approach has pros and cons. </div>
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<span style="background-color:rgb(255,255,255)"><font color="#4c76a2" style="background-color:inherit">Cheers, Ernie</font></span></div>
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<b><font size="2"><b style="color:rgb(0,0,0)"><font size="2"><a shape="rect" href="https://codata.org/canada/" rel="nofollow" target="_blank" style="font-family:serif; font-size:16px; color:rgb(25,106,212); text-decoration-line:underline">https://codata.org/cana</a><font face="Helvetica Neue, Helvetica, Arial, sans-serif"><a shape="rect" href="https://codata.org/canada/" rel="nofollow" target="_blank" style="color:rgb(25,106,212); text-decoration-line:underline">da/</a> </font></font></b></font></b></div>
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<b><font face="verdana, helvetica, sans-serif" size="2">Onward and Upward! </font>
<font face="verdana, helvetica, sans-serif" size="1">C.S. Lewis</font></b></div>
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<div>On Friday, March 12, 2021, 07:32:17 PM EST, Greg Janée <gjanee@ucsb.edu> wrote:
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<div dir="ltr">What is the concern with using de-identified data?<br>
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<div dir="ltr">> On Mar 12, 2021, at 8:07 AM, Daureen Nesdill <<a href="mailto:daureen.nesdill@utah.edu" rel="nofollow" target="_blank">daureen.nesdill@utah.edu</a>> wrote:<br>
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<div dir="ltr">> For the record, at this year’s RDAP Summit we learned that those in clinical research are learning to redo their consent forms to include, if appropriate, the sharing of the de-identified data beyond the research project.<br>
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<div dir="ltr">_______________________________________________<br>
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<div dir="ltr">CODATA-international mailing list<br>
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<div dir="ltr"><a href="mailto:CODATA-international@lists.codata.org" rel="nofollow" target="_blank">CODATA-international@lists.codata.org</a><br>
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