<html>
<head>
<meta http-equiv="Content-Type" content="text/html; charset=Windows-1252">
</head>
<body>
<div>
<div>
<div dir="ltr" style="color: rgb(0, 0, 0); background-color: rgb(255, 255, 255);">
Good Afternoon Daureen,</div>
<div dir="ltr" style="color: rgb(0, 0, 0); background-color: rgb(255, 255, 255);">
Thank you. Data dealing with environmental knowledge and observations is not usually destroyed.</div>
<div dir="ltr" style="color: rgb(0, 0, 0); background-color: rgb(255, 255, 255);">
Fraser.</div>
</div>
<div><br>
</div>
<div class="ms-outlook-ios-signature">Get <a href="https://aka.ms/o0ukef">Outlook for iOS</a></div>
</div>
<hr style="display:inline-block;width:98%" tabindex="-1">
<div id="divRplyFwdMsg" dir="ltr"><font face="Calibri, sans-serif" style="font-size:11pt" color="#000000"><b>From:</b> Daureen Nesdill <daureen.nesdill@utah.edu><br>
<b>Sent:</b> Friday, March 12, 2021 1:21:46 PM<br>
<b>To:</b> Fraser Taylor <FraserTaylor@Cunet.Carleton.Ca>; Greg Janée <gjanee@ucsb.edu><br>
<b>Cc:</b> Greenberg,Jane <jg3243@drexel.edu>; RICE Robin <R.Rice@ed.ac.uk>; codata-international@lists.codata.org <codata-international@lists.codata.org><br>
<b>Subject:</b> RE: [CODATA-international] information request for a Friday</font>
<div> </div>
</div>
<style>
<!--
@font-face
{font-family:"Cambria Math"}
@font-face
{font-family:Calibri}
p.x_MsoNormal, li.x_MsoNormal, div.x_MsoNormal
{margin:0in;
margin-bottom:.0001pt;
font-size:12.0pt;
font-family:"Times New Roman",serif}
a:link, span.x_MsoHyperlink
{color:blue;
text-decoration:underline}
a:visited, span.x_MsoHyperlinkFollowed
{color:purple;
text-decoration:underline}
p
{margin-right:0in;
margin-left:0in;
font-size:12.0pt;
font-family:"Times New Roman",serif}
p.x_msonormal0, li.x_msonormal0, div.x_msonormal0
{margin-right:0in;
margin-left:0in;
font-size:12.0pt;
font-family:"Times New Roman",serif}
span.x_EmailStyle19
{font-family:"Calibri",sans-serif;
color:#1F497D}
.x_MsoChpDefault
{font-size:10.0pt}
@page WordSection1
{margin:1.0in 1.0in 1.0in 1.0in}
div.x_WordSection1
{}
-->
</style>
<div lang="EN-US" link="blue" vlink="purple"><style>
<!--
#x_tableStyle
{background-color:#ffffe6;
width:100%;
padding:2pt;
font-size:10pt;
line-height:11pt;
font-family:'calibri';
color:black;
text-align:left}
#x_strong
{font-size:11pt;
line-height:12pt;
font-family:'Calibri';
color:Red;
text-align:left}
#x_div2
{font-size:0pt;
color:White;
display:none;
visibility:hidden}
-->
</style>
<table id="x_tableStyle">
<tbody>
<tr>
<td>[External Email]</td>
</tr>
</tbody>
</table>
<div>
<div class="x_WordSection1">
<p class="x_MsoNormal"><span style="font-size:11.0pt; font-family:"Calibri",sans-serif; color:#1F497D">The original consent form signed by the participant usually does not address the sharing of data. We see “the data will be destroyed at the end of the project”,
etc.. </span></p>
<p class="x_MsoNormal"><span style="font-size:11.0pt; font-family:"Calibri",sans-serif; color:#1F497D"> </span></p>
<p class="x_MsoNormal"><span style="font-size:11.0pt; font-family:"Calibri",sans-serif; color:#1F497D">Daureen</span></p>
<p class="x_MsoNormal"><span style="font-size:11.0pt; font-family:"Calibri",sans-serif; color:#1F497D"> </span></p>
<div>
<div style="border:none; border-top:solid #E1E1E1 1.0pt; padding:3.0pt 0in 0in 0in">
<p class="x_MsoNormal"><b><span style="font-size:11.0pt; font-family:"Calibri",sans-serif">From:</span></b><span style="font-size:11.0pt; font-family:"Calibri",sans-serif"> Fraser Taylor [mailto:FraserTaylor@Cunet.Carleton.Ca]
<br>
<b>Sent:</b> Friday, March 12, 2021 10:26 AM<br>
<b>To:</b> Greg Janée <gjanee@ucsb.edu>; Daureen Nesdill <daureen.nesdill@utah.edu><br>
<b>Cc:</b> Greenberg,Jane <jg3243@drexel.edu>; RICE Robin <R.Rice@ed.ac.uk>; codata-international@lists.codata.org<br>
<b>Subject:</b> Re: [CODATA-international] information request for a Friday</span></p>
</div>
</div>
<p class="x_MsoNormal"> </p>
<div>
<div>
<div>
<p class="x_MsoNormal" style="background:white"><span style="color:black">Using de-identified data helps with some issues but does not resolve all of the problems.</span></p>
</div>
</div>
<div>
<p class="x_MsoNormal"> </p>
</div>
<div>
<p class="x_MsoNormal">Get <a href="https://aka.ms/o0ukef">Outlook for iOS</a></p>
</div>
</div>
<div class="x_MsoNormal" align="center" style="text-align:center">
<hr size="3" width="98%" align="center">
</div>
<div id="x_divRplyFwdMsg">
<p class="x_MsoNormal"><b><span style="font-size:11.0pt; font-family:"Calibri",sans-serif; color:black">From:</span></b><span style="font-size:11.0pt; font-family:"Calibri",sans-serif; color:black"> Greg Janée <<a href="mailto:gjanee@ucsb.edu">gjanee@ucsb.edu</a>><br>
<b>Sent:</b> Friday, March 12, 2021 12:15:36 PM<br>
<b>To:</b> Daureen Nesdill <<a href="mailto:daureen.nesdill@utah.edu">daureen.nesdill@utah.edu</a>><br>
<b>Cc:</b> Fraser Taylor <<a href="mailto:FraserTaylor@Cunet.Carleton.Ca">FraserTaylor@Cunet.Carleton.Ca</a>>; Greenberg,Jane <<a href="mailto:jg3243@drexel.edu">jg3243@drexel.edu</a>>; RICE Robin <<a href="mailto:R.Rice@ed.ac.uk">R.Rice@ed.ac.uk</a>>;
<a href="mailto:codata-international@lists.codata.org">codata-international@lists.codata.org</a> <<a href="mailto:codata-international@lists.codata.org">codata-international@lists.codata.org</a>><br>
<b>Subject:</b> Re: [CODATA-international] information request for a Friday</span>
</p>
<div>
<p class="x_MsoNormal"> </p>
</div>
</div>
<div>
<div>
<p class="x_MsoNormal" style="margin-bottom:12.0pt"><span style="font-size:11.0pt">[External Email]<br>
<br>
What is the concern with using de-identified data?<br>
<br>
> On Mar 12, 2021, at 8:07 AM, Daureen Nesdill <<a href="mailto:daureen.nesdill@utah.edu">daureen.nesdill@utah.edu</a>> wrote:<br>
> For the record, at this year’s RDAP Summit we learned that those in clinical research are learning to redo their consent forms to include, if appropriate, the sharing of the de-identified data beyond the research project.</span></p>
</div>
</div>
<p class="x_MsoNormal"> </p>
<table class="x_MsoNormalTable" border="1" cellspacing="3" cellpadding="0" width="100%" id="x_tableStyle" style="width:100.0%; background:#FFFFE6; border:none; border-left:solid red 6.0pt">
<tbody>
<tr>
<td style="border:none; padding:2.0pt 2.0pt 2.0pt 2.0pt">
<p class="x_MsoNormal" style="line-height:11.0pt"><span style="font-size:10.0pt; font-family:"Calibri",sans-serif; color:black">This email contains links to content or websites. Always be cautious when clicking on external links or attachments. If in doubt,
please forward suspicious emails to <a href="mailto:phishing@carleton.ca">phishing@carleton.ca</a>.</span></p>
</td>
</tr>
</tbody>
</table>
<div id="x_div2">
<p class="x_MsoNormal"><span style="font-size:1.0pt; color:white">-----End of Disclaimer-----</span></p>
</div>
<p class="x_MsoNormal"> </p>
</div>
</div>
</div>
</body>
</html>