[CODATA-international] INFORMED DECISIONMAKING RE: Data Together COVID-19 Appeal and Actions

[Fotis E. Psomopoulos]

Dear Falk,

thank you for raising this issue - I definitely echo the need for cultural
change (especially within the medical community)!

That being said, I have a more optimistic view, as I believe that there are
also positive steps towards this direction (at least as I perceive them
through my probably naive and definitely EU-biased lenses). Major
e-infrastructures and initiatives, such as ELIXIR
<https://elixir-europe.org/> and RDA <https://www.rd-alliance.org/> are
working towards making medical data more accessible (and FAIR), with
various Tasks and Groups tackling a particular issue at the time.

This is even more evident in the current circumstances, where both
ELIXIR (ELIXIR
support for SARS-CoV-2 research
<https://elixir-europe.org/covid-19-resources>), RDA (RDA-COVID19 Working
Group <https://www.rd-alliance.org/groups/rda-covid19>) and EU (statement
<https://edps.europa.eu/sites/edp/files/publication/20-03-25_edps_comments_concerning_covid-19_monitoring_of_spread_en.pdf>
of the European Data Protection Supervisor on March 25th regarding this
subject), to mention a few of the "majors", started the efforts towards
making COVID-19 related data open, accessible and (wherever possible)
connected to entire analysis workflows (see Galaxy SARS-CoV-2 projerct
<https://github.com/galaxyproject/SARS-CoV-2>as well). Small step (maybe),
but definitely in the right direction.

Kind regards,

Fotis E. Psomopoulos

PS: Regarding  SARS-CoV-2, I'd definitely point you towards the Resources
page <https://github.com/virtual-biohackathons/covid-19-bh20/wiki/Resources>
of the upcoming COVID-19 BioHackathon
<https://github.com/virtual-biohackathons/covid-19-bh20/wiki> (to take
place virtually next week, 5-11 April 2020)

On Mon, 30 Mar 2020 at 22:20, Falk Huettmann <fhuettmann at alaska.edu> wrote:

> Dear all,
>
> thanks;
> so as we frequently find with medical data specifically,
> those are not really shared, made available, used well, and the hospitals
> are usually the LAST ones to do so; as is the medical profession,
> e.g. Chief Surgeons, local clinics and professional organizations and
> societies.
> That's despite their huge salaries and sums spent on 'health'
> and public health, on One Health projects and all such lipservices.
>
> COVID-19 shows us no other, nor the 'great' OneHealth agencies,
> funders and science institutions and organizations.
> Just see the Arctic etc.
> We never said any other.
>
> Or how about a (children) leukemia data base for Germany,
> or all EU & Asian Avian Influenza, or Rabies data shared properly,
> with coordinates and ISO-metadata and published and well-analyzed?
>
> It seems not to matter, nor do people really care.
> I am not aware much that libraries demand those data for their
> repositories neither, nor are many medical degrees having that
> on their agenda, skill set and syllabi, at all. Add vets to that.
>
> So here then is an action item for ICSU, CODATA, NSF, EU, UN
> and all those 'grand ones' to resolve, fast please, for a massive cultural
> change.
> And yes, the pharmaceutical industry fuels much of it; so one would tackle
> those the most then.
>
> Just an idea for those who have none.
>
> Very best and please keep me posted
>    Falk Huettmann PhD, Professor
>     Uni of Alaska Fairbanks
>
> PS If you see public global COVID-19 data, compiled and authoritative with
> coordinates and time and.or DNA, and metadata,
> please kindly advise.
>
>
> On Mon, Mar 30, 2020 at 9:22 AM Berkman, Paul A <Paul.Berkman at tufts.edu>
> wrote:
>
>> Thank you Paul for your kind collaboration.  I look forward to feedback
>> from Simon and hope you are doing well.  Stay healthy!!!  With best
>> regards, Paul
>>
>>
>>
>> *From:* Paul Uhlir [mailto:pfuhlir at gmail.com]
>> *Sent:* Monday, March 30, 2020 11:53 AM
>> *To:* Berkman, Paul A <Paul.Berkman at tufts.edu>
>> *Cc:* Asha CODATA <asha at codata.org>;
>> codata-international at lists.codata.org; Simon Hodson, ED CODATA <
>> simon at codata.org>
>> *Subject:* Re: INFORMED DECISIONMAKING RE: [CODATA-international] Data
>> Together COVID-19 Appeal and Actions
>>
>>
>>
>> That sounds excellent, Paul. I'm not centrally involved, but Simon is the
>> coordinator for CODATA of this initiative. Hope all is well on your end too!
>>
>> Best wishes,
>>
>> Paul
>>
>>
>>
>> On Mon, Mar 30, 2020, 11:24 Berkman, Paul A <Paul.Berkman at tufts.edu>
>> wrote:
>>
>> Hi Asha, Simon and Paul,
>>
>>
>>
>> I hope you are doing well.
>>
>>
>>
>> Thank you and CODATA for your leadership.
>>
>>
>>
>> I would like to help *Data Together COVID-19 Appeal and Actions*
>> <https://codata.org/wp-content/uploads/2020/03/Data-Together-COVID-19-Statement-FINAL.pdf>.
>>
>>
>>
>>
>> Perhaps my best form of assistance would be in helping with science
>> diplomacy to transform data into evidence for informed decisions, operating
>> short-term to long-term, in view of the decisionmaking institutions with:
>>
>>
>>
>> ·       *Governance Mechanisms* (laws, agreements and policies as well
>> as regulatory strategies, including insurance, at diverse jurisdictional
>> levels); and
>>
>> ·       *Built Infrastructure* (fixed, mobile and other assets,
>> including communication, research, observ­ing, information and other
>> systems that require technology plus investment).
>>
>>
>>
>> Data are fundamental to address the immediate urgencies at security time
>> scales as well as the urgencies across generations that will arise
>> post-COVID-19 for our shared sustainability at local-global levels.   As
>> introduced with science diplomacy training through the United Nations
>> Institute for Training and Research (UNITAR) – informed decisionmaking
>> skills, methods and theory are available to train and apply, transforming
>> research into actions *“to service the new reality of data-driven
>> science.”*
>>
>>
>>
>> Please let me know if I can be of further assistance.
>>
>>
>>
>> I hope you and those closest are doing well.   Stay healthy!!!
>>
>>
>>
>> With best regards,
>>
>>
>>
>> Paul
>>
>>
>>
>>
>>
>> *Prof. Paul Arthur Berkman*
>>
>> Director, Science Diplomacy Center
>>
>> Professor of Practice in Science Diplomacy
>>
>> Fletcher School of Law and Diplomacy
>>
>> Tufts University
>>
>> 160 Packard Avenue, Medford MA 02155
>>
>> Office: +1-617-627-6959
>>
>> Cell: +1-617-902-8361
>>
>> Email: paul.berkman at tufts.edu
>>
>> http://sites.tufts.edu/sciencediplomacy/
>> <https://urldefense.proofpoint.com/v2/url?u=http-3A__sites.tufts.edu_sciencediplomacy_&d=DwMGaQ&c=c6MrceVCY5m5A_KAUkrdoA&r=-W0tYttYY2ls6FBzaQ0jgJPAJ_UDNvL6lzYvZV2flVs&m=46vGdcaSbcBSii0f6dt1E0uGahHxHfgSB-xoWuu2xgk&s=t1MDYA0VrK-CZ4UsCTRrqtmJhc8ZIHhi7Z3P81URsis&e=>
>>
>> www.scidiplo.org
>>
>> www.panarcticoptions.org
>> <https://urldefense.proofpoint.com/v2/url?u=http-3A__www.panarcticoptions.org_&d=DwMGaQ&c=c6MrceVCY5m5A_KAUkrdoA&r=-W0tYttYY2ls6FBzaQ0jgJPAJ_UDNvL6lzYvZV2flVs&m=46vGdcaSbcBSii0f6dt1E0uGahHxHfgSB-xoWuu2xgk&s=eKe1UiYUnHInUHgwjhOx76qqOGDBMW_MBP_XTcroakw&e=>
>>
>>
>>
>> *Science Diplomacy: Antarctica, Science and the Governance of
>> International Spaces* (2011), available from the Smithsonian Institution
>> (https://repository.si.edu/handle/10088/16154
>> <https://urldefense.proofpoint.com/v2/url?u=https-3A__repository.si.edu_handle_10088_16154&d=DwMGaQ&c=c6MrceVCY5m5A_KAUkrdoA&r=-W0tYttYY2ls6FBzaQ0jgJPAJ_UDNvL6lzYvZV2flVs&m=46vGdcaSbcBSii0f6dt1E0uGahHxHfgSB-xoWuu2xgk&s=1t_bNYHOMf2kGVxYcj60ClpnwrL6hU0fGCcFgssdg-E&e=>),
>> celebrating the first fifty years of the 1959 *Antarctic Treaty* at the
>> 2009 Antarctic Treaty Summit in *“the interests of science and the
>> progress of all mankind” *(www.atsummit50.aq
>> <https://urldefense.proofpoint.com/v2/url?u=http-3A__www.atsummit50.aq_&d=DwMGaQ&c=c6MrceVCY5m5A_KAUkrdoA&r=-W0tYttYY2ls6FBzaQ0jgJPAJ_UDNvL6lzYvZV2flVs&m=46vGdcaSbcBSii0f6dt1E0uGahHxHfgSB-xoWuu2xgk&s=cqvJbc8mxGoSuMnb-COkEKjx1vX0i1bIdDCCKs0E3nk&e=>),
>> as the first book published on SCIENCE DIPLOMACY.
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>>
>> *From:* CODATA-international [mailto:
>> codata-international-bounces at lists.codata.org] *On Behalf Of *Asha CODATA
>> *Sent:* Monday, March 30, 2020 8:57 AM
>> *To:* codata-international at lists.codata.org
>> *Subject:* [CODATA-international] Data Together COVID-19 Appeal and
>> Actions
>>
>>
>>
>> [image: Image removed by sender.
>> https://codata.org/wp-content/uploads/2020/03/rda-codata-wds-gofair-1024x1010.jpg]*CODATA
>> together with GO FAIR, RDA, and WDS (the four major international data
>> organisations), are pleased to outline their joint commitment to work
>> together to optimise the global research data ecosystem and to identify the
>> opportunities and needs that will trigger federated infrastructures to
>> service the new reality of data-driven science.*
>> <https://codata.org/wp-content/uploads/2020/03/Data-Together-Final-Version-March-2020-FINAL.pdf>
>>
>> A first concrete example of this is the following ‘*Data Together
>> COVID-19 Appeal and Actions*
>> <https://codata.org/wp-content/uploads/2020/03/Data-Together-COVID-19-Statement-FINAL.pdf>
>> ’
>>
>> The COVID-19 pandemic presents a major test for our science system and
>> for our research and data infrastructures.  These infrastructures, such as
>> open science clouds and data commons, must serve the needs of science,
>> policy, and humanity not only in ‘normal times’, but also in times of
>> crisis by providing controlled access to quality data in real-time and at
>> scale for a range of scientific- and policy-related responses.
>>
>> The Data Together organisations are jointly working on the following
>> activities and invite all to contribute:
>>
>> 1.     Data Together–GO FAIR Virus Outbreak Data Network
>> <https://www.go-fair.org/implementation-networks/overview/vodan/> (VODAN)
>>
>> 2.     The Data Together–RDA COVID-19 Working Group
>> <https://www.rd-alliance.org/groups/rda-covid19>
>>
>> 3.     CODATA ‘Making Data Work for Cross-Domain Grand Challenges’
>> <https://codata.org/initiatives/strategic-programme/decadal-programme/> for
>> launch in 2021
>>
>> Read the full statement on *Data Together COVID-19 Appeal and Actions*
>> <https://codata.org/wp-content/uploads/2020/03/Data-Together-COVID-19-Statement-FINAL.pdf>
>>
>>
>>
>> Thanks,
>>
>> Asha
>>
>>
>>
>> --
>>
>> ___________________________
>>
>>
>>
>> Asha Law | Program Assistant, CODATA | http://www.codata.org
>>
>>
>>
>> E-Mail: asha at codata.org
>>
>> Tel (Office): +33 1 45 25 04 96
>>
>>
>>
>> CODATA (Committee on Data of the International Council for Science), 5
>> rue Auguste Vacquerie, 75016 Paris, FRANCE
>>
>> _______________________________________________
>> CODATA-international mailing list
>> CODATA-international at lists.codata.org
>>
>> http://lists.codata.org/mailman/listinfo/codata-international_lists.codata.org
>>
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>
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>


-- 
Fotis E. Psomopoulos
Assistant Research Professor
INAB - Institute of Applied Biosciences
CERTH - Center for Research and Technology Hellas
Thermi 57001, Greece

Phone: +30 2310 498 478
Fax  : +30 2310 498 270
Email: fpsom at certh.gr
Site : https://fpsom.github.io
ORCID: 0000-0002-0222-4273

*While I may be sending this email outside my normal office hours, I have
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